Well we went to the doctors today and had an ultrasound and the results showed that he has a larger than normal Aortic Valve. The doctor thinks he has Marfan Syndrome (people with this syndrome are very tall and skinny Richard is 5'11" and 138 lbs and only 14). Richard will need to go see a Eye Specialist because they will be able to see something in his eyes. The Syndrome affects their muscle's and joints. Marfan syndrome is a disorder of connective tissue. Richard will hate if he has this being as he LOVES to play hockey and that is one of the sports he would not be able to play if it worsens. I'm asking for prayers for Richard and for the family to get through the test and handle the results. Wednesday, September 24, 2008
Heart Specialist Results
Well we went to the doctors today and had an ultrasound and the results showed that he has a larger than normal Aortic Valve. The doctor thinks he has Marfan Syndrome (people with this syndrome are very tall and skinny Richard is 5'11" and 138 lbs and only 14). Richard will need to go see a Eye Specialist because they will be able to see something in his eyes. The Syndrome affects their muscle's and joints. Marfan syndrome is a disorder of connective tissue. Richard will hate if he has this being as he LOVES to play hockey and that is one of the sports he would not be able to play if it worsens. I'm asking for prayers for Richard and for the family to get through the test and handle the results. 
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4 comments:
Will definitely be praying for you, Richard and the family. I can only imagine how hard it would be to wait for results and wonder.
Our prayers are with you and Richard. My younger brother's doctor thinks he has Marfan's Syndrome also (6'8 and skinny), but Joe has never offically gotten tested.
Praying for your family.
Bah on bad news! I hate it!
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