FEAR

I have a big fear that both Richard and Kyle have Marfun Syndrome. Kyle will go to the doctors on the 13th to get his referral to see a heart specialist. He has some of the same problems Richard has with catching his breath and so on and I have been doing research on Marfun Syndrome and it states that during teenage years for no reason they will get stretch marks along their lower back and butt. Which I have discovered that Kyle has and they are big and deep and purple and have gotten worse over the last month. He hasn't gained or lost any weight to give reason for the marks. I seriously think I'm about ready to break I can't take much more bad news with these boys. I have already been told that Richard has a Larger than normal Aortic Valve. So I went back through 5 generations to check it out and the results were that in every generation there was one tall person and that person either died of a heart condition or has a heart condition. My brother who is only 41 has heart issues and is 6'4". My father is 6'3" and has a pace marker and has leaky valves which is a condition of Marfun. My grandfather died of a heart issue when I was 1 years old and his father died young of a heart issue. So I just feel numb with fear of what the future holds with the boys.